Recommendations
Chapter 11. Consent
5. Recommendations
5.1 We respectfully recommend that:
- Following examination of the retained organs or tissue, there
should be a meeting between the clinician and parents and referral
for genetic counselling or other specialist advice if appropriate.
- Once fully informed consent is obtained for research purposes,
the researchers are entitled to remain in possession of the material
retained while research continues. We recommend this extends to
accessing archives and DNA analysis. All research remains subject
to ethics committee approval.
- Local ethics committees be given a supervisory role to police
approved research.
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